Unrest review and another chance to see the film!

Have you had the chance to see Unrest yet? Unrest is a film that follows the lives of people living with ME/CFS. It is an honest, raw, heartwarming, heartbreaking, eyeopening film created by Jen Brea, who lives with ME herself. If you have the chance/time to see this film I would recommend it, even though ME/CFS is a different chronic illness to Fibromyalgia, there is definitely similarities that you will be able to relate to. Read more about Unrest review and another chance to see the film![…]

Coffee & Natter – 15-11-17

Our next Coffee & Natter meet up will be held on the 15th of November from 12pm onward at the Wyevale Garden Centre, Gosforth Park, Newcastle upon Tyne, Tyne and Wear, NE3 5EP. This garden centre used to be called Peter Barratts and some may know it better as that. Members will be meeting up in the café area for a catch up and chat, all are welcome along whether you have been to a meeting before Read more about Coffee & Natter – 15-11-17[…]

Our previous Christmassy craft session (07-11-17)

Everyone who came along had a lovely time yesterday crafting up some Christmassy goodies! Everything from snow globes to candles to Christmas cards, the group have made some wonderful gifts and spent a couple of hours getting creative and spending time with people who know what it’s like to live with Fibromyalgia. I’ve included some photos of their crafty Christmassy creations below, We’ll be holding another Christmassy craft session next month and all members (new Read more about Our previous Christmassy craft session (07-11-17)[…]

Christmas meal (21-12-17)

I know, I know…the ‘C’ word AGAIN! Haha! But! We’re booking places for our annual Christmas meal. It’s being held at the Newton Park Pub on Benton Road on the 21st of December at 2pm. If you would like to come along (and all are welcome to whether you’ve been to a meeting before or not and feel free to bring along someone with you) we need to know numbers before the 1st of November Read more about Christmas meal (21-12-17)[…]

Christmas hamper appeal

Yes…I said the ‘C’ word! Christmas is coming! We’re making up 3 hampers to raffle off at the Christmas meeting (18-12-17) and we already have some things to go in them, but we’re now appealing for Christmas food items (selection boxes, ginger bread, Christmas cake, nibbles..you get the idea..). The shops are filling up with Christmas goodies and we’d be so grateful if people would be able to bring something along to the November group Read more about Christmas hamper appeal[…]

Our previous craft session (glass painting 19-10-17)

Our members had a lovely time at the last craft session, Theresa and Barbara did a brilliant job setting up and helping everyone with their projects (thank you!) and welcoming along everyone including a new member! I’ll add some photos of everyone’s pieces, (they all look brilliant!) that they crafted over the couple of hours. Hope you all had a great day, rest up and take care!

Our previous Group Meeting (AGM) – 16-10-17

At our previous Group Meeting we held our AGM to look back over the past year of our Support Group and everything that we’ve done. It was a great meeting and I was so pleased to see everyone. There was a truly lovely feeling in the room and it was nice to catch up with everyone and go over the agenda. We also discussed our upcoming fundraising events in November and December, which really help Read more about Our previous Group Meeting (AGM) – 16-10-17[…]

Glass painting craft session – (19-10-17)

Hi everyone! Now the winter nights are drawing in it’s lovely to have some candles lit and get all cosy in the evening. So why not make a wonderful painted jar and turn it into a tealight holder to add some extra lovely cosiness to your room! We’re having a glass painting craft session where we’ll have panes of glass and glass jars available to paint. Come along to our craft session on Thursday the Read more about Glass painting craft session – (19-10-17)[…]

Local MP’s support for Fibromyalgia

Hi everyone! I recently contacted our local MP about Fibromyalgia and the petition for recognising Fibromyalgia as a disability in Parliament (instead of ‘an impairment that may lead to disability’). Changing this wording could lead to more funding into research, greater  support for people living with Fibromyalgia, and a raised awareness and understanding of the condition. I’m pleased to let you all know that MP Mary Glindon support this and has recently had an article Read more about Local MP’s support for Fibromyalgia[…]

Group Meeting – (16-10-17)

Hi everyone! Just to keep you all updated that the next group meeting is on Monday 16th of October 2017 from 12:30-2:30pm. We have had to increase the price of the meetings as the room hire prices have gone up and we’re losing money at every meeting (luckily as a group we do lots of fundraising so that we can keep providing a safe space to give support to people living with Fibromyalgia but with Read more about Group Meeting – (16-10-17)[…]

Coffee & Natter meet up – 12-10-17

Our next Coffee & Natter meet up is on the 12th of October and members will be meeting at The Newton Park Pub, Benton Rd, Newcastle upon Tyne NE7 7EB from 12pm onward. These Coffee & Natter meet ups are there for anyone who wants to go along, whether you have Fibromyalgia or are caring for someone with Fibromyalgia and whether you have been to a meeting before or not. It’s a good chance to Read more about Coffee & Natter meet up – 12-10-17[…]

Our last group meeting (18-09-17)

Hello everyone! At our last meeting we welcomed along Chris Reynolds who is an emotional wellbeing consultant, she specialises in a technique called Tapping (also called EFT – Emotional Freedom Technique). Tapping is something that some may find useful to help focus on negative emotions or physical symptoms and re-centre themselves soothing the fight or flight response. Chris Reynolds can be contacted on 0191 2521575 or 07989970260 and works in Whitley Bay. It’s something that Read more about Our last group meeting (18-09-17)[…]

Sleep survey

Hi everyone! We have been speaking with a university student named Sam Blundell-Roberts he’s in his 4th year at Northumbria University and is currently undertaking a design project for the RSA student design awards. The brief is to improve health and wellbeing by encouraging and/or enabling better sleep and Sam has chosen to focus on helping people living with Fibromyalgia. He’s looking to gain insights from people actually living with Fibromyalgia to help shape his Read more about Sleep survey[…]

Unrest on Radio4 tomorrow

Hi everyone! Tomorrow at 4pm on Radio4 Jen Brea the creator of the Unrest film that is screening next month will be talking about it and her journey with the chronic illness ME/CFS and I guess everything along the way! Click the link if you were wanting to listen, if you miss the time slot it will be available to listen to shortly after the broadcast! 💜🦋 BBC RADIO4 – UNREST