September’s National Fibromyalgia Awareness Week (3rd – 10th September 2017)

September saw us celebrate National Fibromyalgia Awareness Week from the 3rd till the 10th of September, and we had a great awareness week this year, with FMAUK saying it was one of the most vocal awareness weeks online! There was lots of different things to get involved with online this year, including a week long photo challenge, adding a ‘twibbon’ to your social media profile picture, joining in the Thunderclap campaign which sent out a Read more about September’s National Fibromyalgia Awareness Week (3rd – 10th September 2017)[…]

Ponteland leisure centre fundraiser update (01-07-17)

On the 1st of July members of the group volunteered to cover our stall at the Ponteland Leisure Centre food & craft fair to help raise funds to keep our support group going. ‘The fair had 40+ artisan traders in a huge marquee selling food, drink and gifts, with live family entertainment, face painting, a children’s funfair, birds of prey, pony rides and much more!’ – ponteland leisure centre fair website It was a fantastic Read more about Ponteland leisure centre fundraiser update (01-07-17)[…]

Group Meeting – guest speaker Dr Walker (19-06-17)

Hi everyone! At our June meeting we welcomed along our guest speaker Dr Walker. We met as usual at The Oxford Centre, but the unusual thing for us was that it happened to be one of the hottest days of the year! We had a lot of members, some windows, and one fan…it’s fair to say it got very, very humid! So a big thank you to all the members who came along and stuck Read more about Group Meeting – guest speaker Dr Walker (19-06-17)[…]

May’s meeting (belated update)…. (15-05-17)

Again, I’m so sorry some of these posts are a bit late, but it really couldn’t be helped. I’m getting everything up to date now though, and thought I would talk a bit about what happened at our May meeting. We had a great time at our group meeting in May, there were 8 new members through the doors and so many of our returning members too. It was so nice to see everyone, and Read more about May’s meeting (belated update)…. (15-05-17)[…]

International Fibromyalgia Awareness Day 12th May 2017..

A bit of a late update from me, I’m so sorry! I’ve been finding it hard to find the time to do everything with moving house but I’m finally starting to find my feet again. So I just wanted to pop an update on the website about our fundraising on International Fibromyalgia Awareness Day! A group of members took turns in helping out on our fundraising stall in the Metrocentre, and even took turns wearing Read more about International Fibromyalgia Awareness Day 12th May 2017..[…]

Our last meeting 10-04-17 (Guest speaker Steve Forster – Disability North)

At our last meeting we gratefully welcomed Steve Forster along to talk to us about PIP assessments. Steve works for a charity called Disability North, and they are a charity that ‘provides advice and guidance on benefit claims from initial application through to representation at appeals. Examples of the benefits we advise on include: • Disability Living Allowance (DLA)/Personal Independence Payment (PIP) • Employment Support Allowance (ESA) • Carer’s Allowance • Attendance Allowance We can Read more about Our last meeting 10-04-17 (Guest speaker Steve Forster – Disability North)[…]

Our craft session (04-04-17)

Our last crafting meet up was on the 4th of April and we had an Easter theme to all of our crafts. Theresa and Barbara kindly demonstrated how to make a number of different paper flowers by folding crepe paper, napkins and tissue paper. The flowers turned out so lovely, we were all amazed at what we had made (and I personally, a little obsessed, with an instant urge to fill my flat with papers Read more about Our craft session (04-04-17)[…]

Self Soothing

What is Self-Soothing?     Self-Soothing is instilled in self-compassion and is important for stimulating your Soothing System and moving you away from your Threat System. Doing things that you love and things that calm and help you every day isn’t selfish, it’s self-care and something you deserve and are worthy of. It’s important to remember that you are entitled to this even when you feel like you haven’t done anything that warrants being kind Read more about Self Soothing[…]

What we discussed at our last meeting (20-03-17)

20-03-17 At the last meeting we explored mindfulness, how stress affects the body with physical symptoms, primary and secondary suffering, and what we use to help manage our pain. It was so lovely to see so many people at the group, and I’d like to take this opportunity to thank each and every one of you for making me feel so welcomed whilst my heart rate was rising at the thought of having to talk Read more about What we discussed at our last meeting (20-03-17)[…]

Monday 21st March 2016

Fibromyalgia support group @ Oxford centre West Farm Avenue Longbenton Newcastle upon tyne NE12 8LT 12.30pm to 2.30pm. Our speaker is Gem O’Connor who is a Neurological Advocacy Co-ordinator from Advocacy Centre North. They are a totally new service in the area and are looking into making connections in order to better support people with neurological conditions and better understand what they need from the Advocacy service. This has been made possible by them receiving Read more about Monday 21st March 2016[…]