Christmas meal (21-12-17)

I know, I know…the ‘C’ word AGAIN! Haha! But! We’re booking places for our annual Christmas meal. It’s being held at the Newton Park Pub on Benton Road on the 21st of December at 2pm. If you would like to come along (and all are welcome to whether you’ve been to a meeting before or not and feel free to bring along someone with you) we need to know numbers before the 1st of November Read more about Christmas meal (21-12-17)[…]

Christmas hamper appeal

Yes…I said the ‘C’ word! Christmas is coming! We’re making up 3 hampers to raffle off at the Christmas meeting (18-12-17) and we already have some things to go in them, but we’re now appealing for Christmas food items (selection boxes, ginger bread, Christmas cake, get the idea..). The shops are filling up with Christmas goodies and we’d be so grateful if people would be able to bring something along to the November group Read more about Christmas hamper appeal[…]

Our previous Group Meeting (AGM) – 16-10-17

At our previous Group Meeting we held our AGM to look back over the past year of our Support Group and everything that we’ve done. It was a great meeting and I was so pleased to see everyone. There was a truly lovely feeling in the room and it was nice to catch up with everyone and go over the agenda. We also discussed our upcoming fundraising events in November and December, which really help Read more about Our previous Group Meeting (AGM) – 16-10-17[…]

Glass painting craft session – (19-10-17)

Hi everyone! Now the winter nights are drawing in it’s lovely to have some candles lit and get all cosy in the evening. So why not make a wonderful painted jar and turn it into a tealight holder to add some extra lovely cosiness to your room! We’re having a glass painting craft session where we’ll have panes of glass and glass jars available to paint. Come along to our craft session on Thursday the Read more about Glass painting craft session – (19-10-17)[…]

Group Meeting – (16-10-17)

Hi everyone! Just to keep you all updated that the next group meeting is on Monday 16th of October 2017 from 12:30-2:30pm. We have had to increase the price of the meetings as the room hire prices have gone up and we’re losing money at every meeting (luckily as a group we do lots of fundraising so that we can keep providing a safe space to give support to people living with Fibromyalgia but with Read more about Group Meeting – (16-10-17)[…]

Coffee & Natter meet up – 12-10-17

Our next Coffee & Natter meet up is on the 12th of October and members will be meeting at The Newton Park Pub, Benton Rd, Newcastle upon Tyne NE7 7EB from 12pm onward. These Coffee & Natter meet ups are there for anyone who wants to go along, whether you have Fibromyalgia or are caring for someone with Fibromyalgia and whether you have been to a meeting before or not. It’s a good chance to Read more about Coffee & Natter meet up – 12-10-17[…]

Unrest on Radio4 tomorrow

Hi everyone! Tomorrow at 4pm on Radio4 Jen Brea the creator of the Unrest film that is screening next month will be talking about it and her journey with the chronic illness ME/CFS and I guess everything along the way! Click the link if you were wanting to listen, if you miss the time slot it will be available to listen to shortly after the broadcast! ūüíúūü¶č BBC RADIO4 – UNREST

Unrest – Tyneside cinema screenings

Hi everyone! Just wanted to let you all know some amazing news. Some of you who were at the support group meeting a couple of months ago will remember me talking about the film Unrest, which details the journey of living with a chronic illness (ME/CFS) from the people living with ME/CFS’s perspective. I was originally wanting to show a community screening of the film but it was going to cost a lot of money Read more about Unrest – Tyneside cinema screenings[…]

Craft session – 12-09-17

Hello everyone! Now that National Fibromyalgia Awareness Week is over and we’re slowly getting back to normal I wanted to let you all know we have a Craft session tomorrow with the wonderful Theresa at The Oxford Centre, Longbenton, NE12 8LT 12:30pm – 2:30pm, ¬£2 entry to help cover materials and room hire (you get to take away what you make with you) This Craft session you will be learning how to make craft paper Read more about Craft session – 12-09-17[…]

Group Awareness Week FMAUK fundraiser! (Saturday 9th September)

Hi everyone! I wanted to let you all know about our upcoming fundraising event that will run during National Fibromyalgia Awareness Week ’17! We are hosting a coffee afternoon on Saturday the 9th of September, at The Oxford Centre, Longbenton, NE12 8LT, 2pm-4pm and everyone is welcome! Not only will we be raising money for FMAUK (¬£1.50 on the door which will pay for all your drinks), we are raising awareness of Fibromyalgia so the Read more about Group Awareness Week FMAUK fundraiser! (Saturday 9th September)[…]

National Fibromyalgia Awareness Week (3rd – 10th September)

Next week is National Fibromyalgia Awareness Week! FMAUK are running a social media campaign to raise awareness of this invisible disability in the public eye. There are a number of things you can do to get involved! You can share your story with FMAUK by emailing and selected stories will be shared across their social media and website You can join their thunderclap campaign by going to¬†Thunderclap campaign¬†and signing up before Monday 4th September Read more about National Fibromyalgia Awareness Week (3rd – 10th September)[…]

Metrocentre fundraiser – 26-08-17

Hi everyone! Just to keep you all up to date, we’re holding a fundraising tombola in the Metrocentre on Saturday 26th August (this coming Saturday) we’ll be there 9am-5pm with all our volunteers covering shifts during that period. It’s on a Saturday and it’s the summer holidays so come on down, bring your kids for a day out and pop by our stall in the Blue Zone (near the poundshops and bus terminals) and support Read more about Metrocentre fundraiser – 26-08-17[…]


We will now be welcoming along Tracey as our guest speaker tomorrow. Tracey is a fitness instructor who lives with Fibromyalgia herself, giving her a unique insight when it comes to exercising with a chronic condition. Tracey will be talking about her journey of living with Fibromyalgia and being a fitness instructor, and also giving a small demonstration to show how Zumba can be modified to meet your mobility levels, and can even be done Read more about ****GROUP MEETING UPDATE****[…]

Quick reminder…

Hi again everyone, Just a quick reminder that at our Support Group Meeting on Monday 21st August we will be having our library audit. Please can everyone bring along any books/library items they have so we can do a round up and make sure everything is still there. This means that the library will be closed at the August meeting, but will reopen at the September meeting. If you have lost or damaged any items Read more about Quick reminder…[…]


Hi everyone, It’s been brought to my attention that on Monday 21st your travel to the support group meeting may be disturbed/delayed due to road works/road closure under the metro bridge on¬†killingworth road (A189)/metro closure & bus replacements. So I’ve tried to get all the info you’ll need to make an informed decision about how best to get to The Oxford Centre, Longbenton, NE12 8LT. If you are getting the metro, please be aware that Read more about IMPORTANT INFO – ROAD CLOSURE/METRO REPLACEMENT BUS SERVICE[…]