Our previous Group Meeting – 19-02-18

We had our first group meeting of 2018 the other day, and it was so lovely to see so many of you there! It was great to catch up with you all to welcome along some new members! We let everyone know that we will no longer be doing paper versions of the newsletters, but instead everything will be done digitally from now on, being more environmentally friendly. All the info that was in the Read more about Our previous Group Meeting – 19-02-18[…]

My one year anniversary as Chairperson

Hi everyone! It showed up on my social media that yesterday was my one year anniversary as the Chairperson of the Newcastle Fibromyalgia Support Group. What a year it’s been! This past year has brought me back to life! Whilst my body is in bits my brain is still ticking away (well…sometimes haha!) and it has honestly been a pleasure and an honour to be the Chairperson of this wonderful group for the past year! Read more about My one year anniversary as Chairperson[…]

Coffee & Natter 07-02-18

Hi everyone, We’re having a meet up next week for a coffee & a natter at The Job Bulman, St Nicholas Ave, NE3 1AA (just off Gosfoth High Street). All living with/caring for someone with Fibromyalgia are welcome to join us and you’re more than welcome to bring someone along for support. We will be there from 11:30 am onward on the 7th of February. These are always really relaxed meet ups (and a good Read more about Coffee & Natter 07-02-18[…]

High court ruling – PIP amendments “blatantly discriminatory”

Hi everyone, You may have seen in the press recently that the High Court have ruled that changes made to PIP in march 2017 were “blatantly discriminatory”. So what changes were they talking about? Well in March 2017 the Government made amendments to the legislation of PIP, stating that: in the activity “planning and following journeys” in Part 3 of the Schedule (mobility activities), the effects of psychological distress are not relevant to descriptors c, Read more about High court ruling – PIP amendments “blatantly discriminatory”[…]

PIP debate in Parliament – let your experiences be heard!

Hi everyone, On the 31st of January Laura Pidcock MP will be debating PIP in Parliament – focusing on claimant experience. In order for her to do this she needs to hear about your experiences of applying, being assessed for and appealing PIP. Please send your experiences to laura.pidcock.mp@parliament.uk and be as brutally honest as possible, it is only by sharing our experiences that we will be able to bring about any change, and there Read more about PIP debate in Parliament – let your experiences be heard![…]

Chair Yoga: Mindful Moves for the Not So Fit

Hi everyone, I wanted to let you all know of some chair yoga classes that are coming up. Yoga and mindfulness go hand in hand and both are so good for both our physical and mental health. The classes are ran by Sally Roach, who lived with ME/CFS in her 20’s and has a vast experience of working with people living with chronic illnesses, pain and fatigue. Sally has been teaching for 18 years and Read more about Chair Yoga: Mindful Moves for the Not So Fit[…]

Moving Forward – Mental Health Charity

At our December meeting we welcomed along a group of ladies from Gateshead who all live with Fibromyalgia and had got together through a charity called Moving Forward. They are setting up their own support group now at meet at the Civic Centre in Gateshead once a fortnight. Moving Forward told us that we would be able to access their services too, so I thought I would tell you all a little bit more about Read more about Moving Forward – Mental Health Charity[…]

‘Not all disabilities are visible’ blue heart badges

Hiya gang, I found these on Twitter and thought that some members might find them useful, particularly when in a public space or using public transport etc. N&C Phlexicare are giving away FREE invisible disabilities heart shaped badges to raise awareness for invisible illnesses and to ensure that people who suffer from an invisible disability feel confident in using the facilities that are available to them, without feeling as though they are being judged by Read more about ‘Not all disabilities are visible’ blue heart badges[…]

Unrest now available on Netflix

Hi everyone! Just wanted to update you all that the film Unrest is now available on Netflix. I’ve written about Unrest before, and we went along to see it at the Tyneside Cinema not too long ago. Unrest is a documentary about Jennifer Brea and other people across the world who all live with ME. Obviously ME is different to Fibromyalgia, but I think there’s a lot in this film that we can all relate Read more about Unrest now available on Netflix[…]

Free yoga session – 13-01-18

Hi gang, I’ve been contacted by a yoga teacher named Alison (good name eh!) who has advised me she also has Fibromyalgia. She’s running a free taster session tomorrow (13th Jan) 10am – 12pm. Alison says: the beauty of Iyengar Yoga is its use of props to help people with difficulties achieve the poses safely and with precision. The free session is a general taster but I run a fogey yoga class that focuses especially Read more about Free yoga session – 13-01-18[…]

Coffee & Natter meet up – 17-01-18

Hi everyone! Some of our members have organised to meet up next Wednesday the 17th of January from 11:30am onwards at the Job Bullman on Gosforth High Street. The address of the pub is St Nicholas Ave, Newcastle upon Tyne NE3 1AA. Everyone is welcome and you’re welcome to bring someone along with you for support. There is parking directly behind the Job Bullman and also in the Sainsbury’s car park opposite too. If you’re Read more about Coffee & Natter meet up – 17-01-18[…]

Reminder: No meeting in January

Hi everyone! Just a quick reminder that there will be no meeting held this month (January) to give us all a chance to recover after a busy festive period. The first meet up of 2018 will be on the 19th of February, 12:30 – 2:30pm at The Oxford Centre, Longbenton, NE12 8LT. New members come along for free and all returning members pay £2 on the door, remember you’re welcome to bring someone with you Read more about Reminder: No meeting in January[…]

Resources page updates

You may or may not have noticed some changes to the website recently but we’ve been updating our information and design (many thanks again to FMAUK trustee Simon Stones for all his help!) I’m in the process of updating the Resources page to include helpful information and links to useful websites. Some things on there so far include sleep and chronic pain, sex and chronic pain, pregnancy and Fibromyalgia, Mindfulness, Benefits help and more. I Read more about Resources page updates[…]

Wishing all our members a happy New Year!

Happy New Year! Sending all of our members wishes for a wonderful 2018! I hope you’re all able to take some time to reflect on 2017, the good, the bad, and everything in between! You’ve made it through 100% of your bad days, and I’m so proud of you all. Whatever you are doing tonight, remember you are loved, you are valid, and you are worthy. This can be a really hard time of year Read more about Wishing all our members a happy New Year![…]

Christmas Day Twitter chat

On Christmas Day at 6pm Natasha Lipman (@natashalipman on Twitter) will be hosting a Twitter chat for people living with chronic illnesses who may be finding the holidays hard to get through. I wanted to let you all know in case you wanted to join in. All you need to do is use the hashtag #spooniechristmaspjparty and you’ll be able to connect with lots of people across twitter who understand how much Christmas takes out Read more about Christmas Day Twitter chat[…]