Great North Run Weekend

This weekend is our hometown Great North Run and the Great North 5K the day before! This year we are so lucky to be able to say that we have people fundraising in both events! First up on Saturday is the Great North 5K, and we have one of our long time members, Jane, walking the 5K in order to raise money to help keep our support group running! Jane has Fibromyalgia and will be Read more about Great North Run Weekend[…]

Our 10 year anniversary in April

So, I haven’t update the blog in a few months now, unfortunately I just haven’t been well enough and I’ve had a lot going on with assessments and more, but I’m finding time now to update the blog on some things that we’ve been up to over the past few months. Our ten year anniversary was back in April, and it was an amazing and busy day! We had a lot of members, both old Read more about Our 10 year anniversary in April[…]

Mental Health Awareness Week

This week is Mental Health Awareness Week (14th-20th May) the focus is on Stress and how we can cope with stress better to improve our mental health. While stress isn’t a mental health problem in itself, it often leads to depression, anxiety, self-harm and suicide. It can also lead to physical health problems such as cardiovascular disease and joint and muscle problems. – Mental Health Foundation The Mental Health Foundation have released a research report Read more about Mental Health Awareness Week[…]

May 12th International Fibromyalgia Awareness Day

Hi everyone! Today is International Fibromyalgia Awareness Day! FMAUK’s theme this year is ‘Don’t delay, connect today!’ which aims to highlight that early diagnosis, recognition of Fibromyalgia, timely access to evidence based treatment, and peer support are essential for the long term health and wellbeing of people living with Fibromyalgia and their families. Please feel free to save and share the image below which I’ve made to help inform people about Fibromyalgia, but also to let Read more about May 12th International Fibromyalgia Awareness Day[…]

Our next meeting – Our 10 year anniversary!

Hi everyone! On Monday the 16th of April we will be meeting at The Oxford Centre, Longbenton, NE12 8LT in room one (next to the cafe area) from 12pm – 2:30pm for our 10 year anniversary meeting! As this is a special occasion we have planned a special meeting, with not just one guest speaker, but multiple companies will be there for you to speak to! We will be welcoming Disability North, Moving Forward (a Read more about Our next meeting – Our 10 year anniversary![…]

Our previous group meeting

Our previous group meeting was held on the 19th of March and we welcomed along Ron Reynolds who has worked in the holistic field for the past 11 years. Ron spoke with members about meditation and performed a guided meditation with drumming.   All members got to chat and catch up afterwards and we celebrated Angela’s birthday. Angela founded the group 10 years ago and has worked tirelessly to keep the support group running, giving Read more about Our previous group meeting[…]

Well I would walk 500 miles, and I would walk 400 more…

…just to be the man who walked 900 miles for FMAUK! Okay, okay.. we all know my songwriting skills leave a lot to be desired.. BUT.. Paul Truswell is taking on a massive challenge and walking 900 miles, all to raise money for FMAUK and to raise awareness of Fibromyalgia! Paul has a big target of wanting to raise £10,000! WOW! Paul will be starting his journey in Dover on the 1st of April (I Read more about Well I would walk 500 miles, and I would walk 400 more…[…]

Dolls for dementia patients – donations welcome!

Our lovely committee member Ali Bambra is collecting dolls and dolls clothing to donate to dementia patients. This is through the same group that we collected the knitted blankets for premature babies for. If anyone is passing a charity shop and sees a doll or clothes it would be so kind and so lovely if you are able to donate them to this cause. Or if you’re having a clear out of your children’s toys Read more about Dolls for dementia patients – donations welcome![…]

Research opportunity for 16-25 year olds

The university of Cambridge are looking for participants for a research study that will look at the impact that long term physical illness, disability, and health conditions have in the wellbeing, social life and education of young people (aged 16-25). Your condition must have been diagnosed, treated or cared for by a health professional at some point. Taking part involves completing an anonymous on-line survey about your thoughts and feelings. The majority of the questions are  multiple-choice Read more about Research opportunity for 16-25 year olds[…]

High court ruling – PIP amendments “blatantly discriminatory”

Hi everyone, You may have seen in the press recently that the High Court have ruled that changes made to PIP in march 2017 were “blatantly discriminatory”. So what changes were they talking about? Well in March 2017 the Government made amendments to the legislation of PIP, stating that: in the activity “planning and following journeys” in Part 3 of the Schedule (mobility activities), the effects of psychological distress are not relevant to descriptors c, Read more about High court ruling – PIP amendments “blatantly discriminatory”[…]

PIP debate in Parliament – let your experiences be heard!

Hi everyone, On the 31st of January Laura Pidcock MP will be debating PIP in Parliament – focusing on claimant experience. In order for her to do this she needs to hear about your experiences of applying, being assessed for and appealing PIP. Please send your experiences to laura.pidcock.mp@parliament.uk and be as brutally honest as possible, it is only by sharing our experiences that we will be able to bring about any change, and there Read more about PIP debate in Parliament – let your experiences be heard![…]

Moving Forward – Mental Health Charity

At our December meeting we welcomed along a group of ladies from Gateshead who all live with Fibromyalgia and had got together through a charity called Moving Forward. They are setting up their own support group now at meet at the Civic Centre in Gateshead once a fortnight. Moving Forward told us that we would be able to access their services too, so I thought I would tell you all a little bit more about Read more about Moving Forward – Mental Health Charity[…]

‘Not all disabilities are visible’ blue heart badges

Hiya gang, I found these on Twitter and thought that some members might find them useful, particularly when in a public space or using public transport etc. N&C Phlexicare are giving away FREE invisible disabilities heart shaped badges to raise awareness for invisible illnesses and to ensure that people who suffer from an invisible disability feel confident in using the facilities that are available to them, without feeling as though they are being judged by Read more about ‘Not all disabilities are visible’ blue heart badges[…]