12th April 2017


…just to be the man who walked 900 miles for FMAUK! Okay, okay.. we all know my songwriting skills leave a lot to be desired.. BUT.. Paul Truswell is taking on a massive challenge and walking 900 miles, all to raise money for FMAUK and to raise awareness of Fibromyalgia! Paul has a big target of wanting to raise £10,000! WOW! Paul will be starting his journey in Dover on the 1st of April (I
Our lovely committee member Ali Bambra is collecting dolls and dolls clothing to donate to dementia patients. This is through the same group that we collected the knitted blankets for premature babies for. If anyone is passing a charity shop and sees a doll or clothes it would be so kind and so lovely if you are able to donate them to this cause. Or if you’re having a clear out of your children’s toys
The university of Cambridge are looking for participants for a research study that will look at the impact that long term physical illness, disability, and health conditions have in the wellbeing, social life and education of young people (aged 16-25). Your condition must have been diagnosed, treated or cared for by a health professional at some point. Taking part involves completing an anonymous on-line survey about your thoughts and feelings. The majority of the questions are  multiple-choice
We had our first group meeting of 2018 the other day, and it was so lovely to see so many of you there! It was great to catch up with you all to welcome along some new members! We let everyone know that we will no longer be doing paper versions of the newsletters, but instead everything will be done digitally from now on, being more environmentally friendly. All the info that was in the
Hi everyone! It showed up on my social media that yesterday was my one year anniversary as the Chairperson of the Newcastle Fibromyalgia Support Group. What a year it’s been! This past year has brought me back to life! Whilst my body is in bits my brain is still ticking away (well…sometimes haha!) and it has honestly been a pleasure and an honour to be the Chairperson of this wonderful group for the past year!

Coffee & Natter 07-02-18

Hi everyone, We’re having a meet up next week for a coffee & a natter at The Job Bulman, St Nicholas Ave, NE3 1AA (just off Gosfoth High Street). All living with/caring for someone with Fibromyalgia are welcome to join us and you’re more than welcome to bring someone along for support. We will be there from 11:30 am onward on the 7th of February. These are always really relaxed meet ups (and a good
Hi everyone, You may have seen in the press recently that the High Court have ruled that changes made to PIP in march 2017 were “blatantly discriminatory”. So what changes were they talking about? Well in March 2017 the Government made amendments to the legislation of PIP, stating that: in the activity “planning and following journeys” in Part 3 of the Schedule (mobility activities), the effects of psychological distress are not relevant to descriptors c,
Hi everyone, On the 31st of January Laura Pidcock MP will be debating PIP in Parliament – focusing on claimant experience. In order for her to do this she needs to hear about your experiences of applying, being assessed for and appealing PIP. Please send your experiences to laura.pidcock.mp@parliament.uk and be as brutally honest as possible, it is only by sharing our experiences that we will be able to bring about any change, and there
Hi everyone, I wanted to let you all know of some chair yoga classes that are coming up. Yoga and mindfulness go hand in hand and both are so good for both our physical and mental health. The classes are ran by Sally Roach, who lived with ME/CFS in her 20’s and has a vast experience of working with people living with chronic illnesses, pain and fatigue. Sally has been teaching for 18 years and

Calling all knitters!

Afternoon gang! We’re appealing for knitted or crocheted 18inch blankets to donate to Newcastle hospitals for premature babies. This is a cause very close to our hearts and we would be so appreciative and grateful to anyone who is able to make a blanket. We will be collecting them at the next meeting (19th February, 12:30-2:30pm at The Oxford Centre, Longbenton, NE12 8LT). Thank you all for the support shown for this cause already, we’ve
At our December meeting we welcomed along a group of ladies from Gateshead who all live with Fibromyalgia and had got together through a charity called Moving Forward. They are setting up their own support group now at meet at the Civic Centre in Gateshead once a fortnight. Moving Forward told us that we would be able to access their services too, so I thought I would tell you all a little bit more about
Hiya gang, I found these on Twitter and thought that some members might find them useful, particularly when in a public space or using public transport etc. N&C Phlexicare are giving away FREE invisible disabilities heart shaped badges to raise awareness for invisible illnesses and to ensure that people who suffer from an invisible disability feel confident in using the facilities that are available to them, without feeling as though they are being judged by
Hi everyone! Just wanted to update you all that the film Unrest is now available on Netflix. I’ve written about Unrest before, and we went along to see it at the Tyneside Cinema not too long ago. Unrest is a documentary about Jennifer Brea and other people across the world who all live with ME. Obviously ME is different to Fibromyalgia, but I think there’s a lot in this film that we can all relate

Free yoga session – 13-01-18

Hi gang, I’ve been contacted by a yoga teacher named Alison (good name eh!) who has advised me she also has Fibromyalgia. She’s running a free taster session tomorrow (13th Jan) 10am – 12pm. Alison says: the beauty of Iyengar Yoga is its use of props to help people with difficulties achieve the poses safely and with precision. The free session is a general taster but I run a fogey yoga class that focuses especially
Hi everyone! Some of our members have organised to meet up next Wednesday the 17th of January from 11:30am onwards at the Job Bullman on Gosforth High Street. The address of the pub is St Nicholas Ave, Newcastle upon Tyne NE3 1AA. Everyone is welcome and you’re welcome to bring someone along with you for support. There is parking directly behind the Job Bullman and also in the Sainsbury’s car park opposite too. If you’re