‘Not all disabilities are visible’ blue heart badges

Hiya gang, I found these on Twitter and thought that some members might find them useful, particularly when in a public space or using public transport etc. N&C Phlexicare are giving away FREE invisible disabilities heart shaped badges to raise awareness for invisible illnesses and to ensure that people who suffer from an invisible disability feel confident in using the facilities that are available to them, without feeling as though they are being judged by Read more about ‘Not all disabilities are visible’ blue heart badges[…]

Unrest now available on Netflix

Hi everyone! Just wanted to update you all that the film Unrest is now available on Netflix. I’ve written about Unrest before, and we went along to see it at the Tyneside Cinema not too long ago. Unrest is a documentary about Jennifer Brea and other people across the world who all live with ME. Obviously ME is different to Fibromyalgia, but I think there’s a lot in this film that we can all relate Read more about Unrest now available on Netflix[…]

Free yoga session – 13-01-18

Hi gang, I’ve been contacted by a yoga teacher named Alison (good name eh!) who has advised me she also has Fibromyalgia. She’s running a free taster session tomorrow (13th Jan) 10am – 12pm. Alison says: the beauty of Iyengar Yoga is its use of props to help people with difficulties achieve the poses safely and with precision. The free session is a general taster but I run a fogey yoga class that focuses especially Read more about Free yoga session – 13-01-18[…]

Coffee & Natter meet up – 17-01-18

Hi everyone! Some of our members have organised to meet up next Wednesday the 17th of January from 11:30am onwards at the Job Bullman on Gosforth High Street. The address of the pub is St Nicholas Ave, Newcastle upon Tyne NE3 1AA. Everyone is welcome and you’re welcome to bring someone along with you for support. There is parking directly behind the Job Bullman and also in the Sainsbury’s car park opposite too. If you’re Read more about Coffee & Natter meet up – 17-01-18[…]

Reminder: No meeting in January

Hi everyone! Just a quick reminder that there will be no meeting held this month (January) to give us all a chance to recover after a busy festive period. The first meet up of 2018 will be on the 19th of February, 12:30 – 2:30pm at The Oxford Centre, Longbenton, NE12 8LT. New members come along for free and all returning members pay £2 on the door, remember you’re welcome to bring someone with you Read more about Reminder: No meeting in January[…]

Resources page updates

You may or may not have noticed some changes to the website recently but we’ve been updating our information and design (many thanks again to FMAUK trustee Simon Stones for all his help!) I’m in the process of updating the Resources page to include helpful information and links to useful websites. Some things on there so far include sleep and chronic pain, sex and chronic pain, pregnancy and Fibromyalgia, Mindfulness, Benefits help and more. I Read more about Resources page updates[…]

Wishing all our members a happy New Year!

Happy New Year! Sending all of our members wishes for a wonderful 2018! I hope you’re all able to take some time to reflect on 2017, the good, the bad, and everything in between! You’ve made it through 100% of your bad days, and I’m so proud of you all. Whatever you are doing tonight, remember you are loved, you are valid, and you are worthy. This can be a really hard time of year Read more about Wishing all our members a happy New Year![…]

Christmas Day Twitter chat

On Christmas Day at 6pm Natasha Lipman (@natashalipman on Twitter) will be hosting a Twitter chat for people living with chronic illnesses who may be finding the holidays hard to get through. I wanted to let you all know in case you wanted to join in. All you need to do is use the hashtag #spooniechristmaspjparty and you’ll be able to connect with lots of people across twitter who understand how much Christmas takes out Read more about Christmas Day Twitter chat[…]

The Christmas Meal

On Thursday the 21st of December some of our members met at The Newton Park Pub on Benton Road for the annual Christmas meal. It was a lovely get together, and a great way for members who might not have had a Christmas party to be able to experience a relaxed Christmas get together with people who understand the pain and effort it took to get there. A very Merry Christmas from everyone on the Read more about The Christmas Meal[…]

Chronic illness Christmas prep!

Living with a chronic illness (or multiple chronic illnesses as is common with Fibromyalgia!) it’s hard to cope with extra stress and commitments added in to your daily routine. So whilst Christmas is a wonderful time of year, it can be hard to cope with. I’ve said before that living with chronic illnesses has a lot of admin involved, so for me it’s a lot of planning and lists and at Christmas time that doesn’t Read more about Chronic illness Christmas prep![…]

Wishing you all a very Merry Christmas and a happy New Year!

It’s Chrissstttmmmmaaaassss!   Wishing you all a very Merry Christmas and a happy New Year from all of us at Newcastle Fibromyalgia Support Group! Whilst Christmas is a wonderful time of year, it can also be extremely hard and isolating, especially when living with multiple chronic illnesses. Please remember to go easy on yourselves, rest in between family/friends gatherings and know that if you need to sneak off for a nap no one will mind. Read more about Wishing you all a very Merry Christmas and a happy New Year![…]

My Christmas attitude of gratitude!

Hello everyone! Christmas is a great time to reflect on everything that’s happened over the past year, so I’d like to take some time to show my gratitude to you all! I really wanted to start with taking a moment to thank the group founder Angela Campbell. Without her starting the group up 9 years ago, we wouldn’t have this life line in Newcastle, bridging the gap in care and support for people living with this Read more about My Christmas attitude of gratitude![…]

Our Christmas Party 18-12-17

Ho, Ho, Hola gang! We had our Christmas Party yesterday, and so many of you turned up to wish one another a Merry Christmas and spend some time with your Fibro family! It really was such a lovely couple of hours and I feel so lucky to know so many wonderful people!! We welcomed along some members who have recently set up a support group in Gateshead, they meet at the Gateshead Civic Centre, once Read more about Our Christmas Party 18-12-17[…]

Fundraising for Parliament

Hiya gang! I’ve already posted on social media about the items I have for sale for help raise funds for my upcoming Parliament trip, but thought I’d pop them here too just in case there’s any members who don’t use social media but would like to purchase any of the items too. I’ve personally designed and had specially printed these tote bags, and there’s only a limited number of them. I’m selling them for only Read more about Fundraising for Parliament[…]

Christmassy craft session 11-12-17

Yesterday we had our last craft session of 2017! The weather outside was most certainly frightful, but we still had a lovely group turn up to take a few hours out of everyday life to do some Christmassy crafts and be around people also living with chronic illnesses. Christmas can be an extremely hard and exhausting time when you have a chronic illness, so this little break away from all the planning/shopping/wrapping was a lovely Read more about Christmassy craft session 11-12-17[…]